Putting the KAFOs on Grace is the absolute worst part of my day. I try to sing and talk to her and be happy but she HATES it. The whole process looks like this: (Mom, you may want to skip this picture!)
|Tears and pantyhose. Reminds me of a job I once had.|
Grace's KAFOs have a hinge on each side of her knee, so she's able to bend her knees. But once she stands upright, a bar slides over the hinge to keep her legs straight.
We then stand for a bit - her physical therapist wants her to do it twice a day for 15-20 minutes at a time. She mostly will play on her laptop or the iPad, but occasionally she will just want to stand in front of me and lay her head on my shoulder. That cuddle is both heartbreaking and heartwarming at the same time.
|Standing like a big girl!|
We've had them for about a week and she's doing really well so far. Our goal is to make her realize she can stand on her own, which will lead to pulling herself up and walking.
I can't wait to see her running around the backyard this summer!