We were told that today would be a flurry of activity. Doctors would be visiting, scans done, plans made... and it wasn't nearly as active as we'd hoped. They took Grace in for her MRI at 8:30. The NICU pediatrician was there and ready to read the results, so we were hoping to have a game plan set by around ten. We found out that the bleeding was not caused by a stroke and that she is no longer bleeding, both excellent pieces of news! We then just had to wait for the neurosurgeon to read the results and set the plan to fix the extra fluid in her head. So we waited, and waited..and waited...
Apparently there was an accident today and the neurosurgeon was in surgery all afternoon. There is still as small chance that we might here from him tonight, but we're pretty sure it won't be until tomorrow.
I'm frustrated. Besides the extra fluid in her head, Grace is perfect in every way. While going to visit her, I can hear baby's in the other rooms crying. I want her in MY room. I want to just take her home! I want everything to be fixed now.
I'm trying to trust God's timing in all of this. For whatever reason, this was brought to us. I don't believe the saying that, "God will never give you more than you can handle." Our pastor once made the point that God definitely does give you more than you can handle at times. But when you put your trust in Him, He will provide you with the tools you need to make it through and end up better on the other side.
So what am I going to learn from this? What weaknesses do I have that will be strengthened through this? I can't wait to get Gracie home and can't wait to see who we are as a complete family on the other side of this adventure.
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Bethany, I can so relate!! When Evan was in the NICU, I had an emotional breakdown. I bawled and bawled like someone had died. Your hormones are out of whack, and on top of that, you're worried, want your baby, and you're tired. If you need to vent or chat, you can always call me! Send me a message on facebook if you need my phone number. I mean it! Hang in there. I'm so glad Grace is here, and they are working toward a plan for her. Your news from today is very positive! I'll pray for her again tonight (and for you guys).
ReplyDeleteThinking of you!
Megan
I am so thankful that she didn't have a stroke (that's what Brandee's son had). Hopefully one shunt to drain the fluid will be all she needs until she's even more perfect. Unfortunately things never get done "on time" in a NICU. I'm glad the pediatrician was there to give you the preliminary results though. James' surgeons would often stop by and see us after midnight because they had been in surgery all day. It's always good when they stop by, but frustrating when they come at a time when you're not able to put two words together. I would suggest having any questions written down so you don't forget anything...you never know when you'll see them next.
ReplyDeleteI'm also thankful that you and Gracie are in such a nice, new hospital. The hospital where James was born didn't have a NICU able to deal with his issues so we were in different hospitals within hours after his birth. Keep being thankful for being able to hold her and feed her and love on her. She's only a short walk away!
bethany,
ReplyDeletethanks for the updates. glad to know that she is still doing great!
someone just told me the other day that God won't give me more than i can handle. my response...God tells us that we can handle anything WITH him, so that pretty much means anything can happen, right! there is little i could handle on my own...good thing He is always right there to get us through. good to know you are looking to Him! hang in there. at the top of a mountain there is always an excellent view:)
Hang in there Mighty B! We will continue to pray for you and your family! Thinking of you often!
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