Thursday, September 16, 2010

Gracie

Things didn't go quite as smoothly as we'd hoped today with the specialist. Here's the scoop - I'll try to write this as clearly as I can.

What's Going On?
Two to three months ago something happened to cause a severe hemorrhage in Gracie's brain. The bleeding caused clots, which then caused blockages in the ventricles and prevented fluid from circulating like it should.

How Did This Happen?
At this point we have no idea. There are several different potential causes:
  •  it could have been caused by a genetic issue,
  • an infection (which I don't have any history of),
  • an autoimmune disorder that can effect the blood, like Lupus,
  • or trauma (Serious trauma like a car accident or being hit in the stomach with a baseball bat - nothing like that has happened)
 They did pretty full screen of tests on me to try and find the cause. Grace will have the same slew of tests when she is born.

What Does This Mean?
We won't know until after she's born. It could mean that she'll have some extra care when she's born then be completely fine. Worst case scenario could mean that she would be prone to seizures or have cerebral palsy.

What Happens Now?
The doctor determined that it is best that we have Grace as quickly as possible to start fixing the problem. So Saturday morning I will be going to the hospital for a c-section. Since there are so many unknowns still, they were concerned that a regular delivery could cause more damage. I'll be going to a bigger hospital where a team of doctors will be waiting to take care of Grace. I'll be in the hospital until at least Wednesday. They do not know how long Grace will have to stay.

After the delivery, it depends on how Grace responds as to what will happen. They'll run all the blood work, do an MRI and other tests to determine how severe (or minor) the damage is and go from there.

How Is The Family?
Jeff and I are pretty numb. We're still counting on the best case scenario for Grace, but this all has happened so quickly we feel like we've been hit by a truck. My emotions change from minute to minute from ticked off, to sad, confident - but mostly scared. There are just so many unknowns right now that I feel like we can't prepare for anything. And I can be somewhat of  a control freak, so not knowing does not work well for me! Riley knows the baby is coming Saturday and is excited. I tried to tell him that the baby might be sick and won't be able to come home right away, but I don't think he got it. Brenna doesn't get it at all. :-)

That's all I can think of for now. I'm going to zone out in front of America's Funniest Home Videos for a bit and then start getting stuff ready for the big day.

The doctor told us that if we believe in a higher power, to ask for His hand in this, because that's all we can do at this point until she's delivered. So, if you'd please have a chat with the Man upstairs on our behalf, we'd be very grateful.

15 comments:

  1. Bethany,
    I'm so so sorry that you have to go through this....I have been thinking and praying for you many times since I read the news. He works in mysterious ways, so I pray He places His healing hands on your sweet baby girl and she comes out just as perfect as the first two. Know that there are a lot of people out there sending prayers to you and your family and your sweet babe.
    Hang in there.

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  2. One of my favorite songs right now! We will be keeping you and grace in our prayers.

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  3. Praying for all of you! Praying that you and Jeff have a peace for the next few days as you wait for her arrival. Praying for quick information from the doctors. Praying for baby Gracie and that gods will be done for her. I heard something at a beth Moore study I'm doing...gods plan A is still going....even when we might think it's not, it is! Cling to that!

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  4. Just wanted to let you know that there are many out here praying for you guys right now, complete strangers like me. *Hugs*

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  5. Praying for you and Gracie and your family!

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  6. Bethany I just want to say that I have been praying for you guys and thinking about you the last few days. I am praying that God would give you peace throughout this situation and that you and Jeff can rest in knowing that God is in control and He is right there beside you and will continue to be. I will praying tomorrow for a easy delivery and recovery for you and pray that Grace is strong enough for all of her test. I'm also praying that she is perfectly healthy upon delivery, what a blessing that would be and a testimony of how great our God is to the doctors and staff at the hospital.

    I love the song choice :) JJ Heller is by far one of my favorites :)

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  7. we will be praying for you and your family! know this....the same God that made the heavens and earth has baby gracie in HIS hands. cling to Him.
    sending lots of love your way:)

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  8. I will pray, but I know that no words will make you feel better right now. Know that it's okay to be angry and it's okay to be angry with God. I have questioned Him many times over the past year because I don't understand the purpose in making our littlest ones suffer...some day I will but for now it just makes me sad and angry. The last 13 months have included 8 OR trips, a dozen EKGs, 3 heart echos, half a dozen brain ultrasounds, a full genetic work-up, and much more...and nothing has been able to tell the doctors why. The song I listened to constantly was "I will Praise You in this Storm" by Casting Crowns. Message me anytime you need to vent.
    Also I'm not sure if you're still in touch with Brandee (Canfield) Hoffman, but she's on facebook. Her son got a brain infection when he was 7 months old (he's 2 now). They're still fighting an uphill battle but he's making progress and I know she would be happy to talk to you if you need someone that understands.

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  9. I have been praying for you a lot lately as you were heading to the doctor...now I will just pray more! God knows exactly what he is doing, have no doubt in that. Just let this draw you closer to him and trust in him. Prayers are a comin'!

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  10. Bethany,

    I will be lifting your sweet baby Grace, and your family before the throne of God's grace. Her name is very fitting! I know from experience that God is still in the miracle business and that nothing happens that has not passed through HIS hand first. He is faithful even if the circumstances are not as we would like them. May God bless you and give you peace. He loves you!

    Lori Jackson (Brittany's Mom)

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  11. Bethany,
    We will be lifting you and your family, especially precious baby Grace, up in prayer. May God flood you with peace while you anxiously await her arrival. Remember that God holds you both in His hands :) God Bless!

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  12. Bethany,

    Brittany Armstrong e-mailed me a link to your blog. I will be praying for peace, healing, and understanding for you, your daughter and your family. -I work at a high-risk obstetrics office and see cases like this occasionally, so if you have any questions, feel free to email me at ashleyh@hotmail.com.

    Praying for you,
    Ashley (Henry) Craw

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  13. Bethany

    we will keep you in our prayers


    Jodie Ramer(Justin's mom)

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  14. Praying for you & your family Bethany.

    Karie (Marchese) Wong

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