She was young, probably about 16, blond, out with friends, and I was about to climb over two booths at IHOP to shove her pancakes where the sun doesn't shine. Why? She was staring at my baby, talking about her with her friends and motioning to her with a jut of her chin.
And it ticked me off.
Gracie's hair is s-l-o-w-l-y growing back from her surgery. Her rainbow shaped scar is faint, but still noticeable. Since her head is so small, you can see the outline of the shunt.
I want to be proud of her scar. To leave it uncovered and have it seen as a badge of honor. Something that says, "Look at how tiny my baby is! And she's had major surgery
on her brain. Isn't she amazing?" And a big part of me does feel that way. I can't believe all that she's been through and her life has barely begun.
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| Grace - two days after surgery. |
But I'm also self-conscious about it. I want people to look at Grace and think, "Aww, she's so cute!" not, "Hey, what's wrong with that baby?". I feel like when people hear "hydrocephalus" they automatically think, "Oh water on the brain. Poor girl. She'll be slow. Won't be normal."
Maybe no one thinks that. Maybe I'm just bringing my own insecurities and putting them on her. I'm so afraid that because of her 'condition', people will judge her without giving her a chance. And it turns out that's exactly what I'm doing. I'm getting defensive over something that I have no reason to be defensive about.
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| Gracie - a few days after having the stitches removed. |
I pray that as she grows I gain the ability to get over myself. That I raise her to know that she is strong, smart and capable of anything. That someday when she's being awarded the Nobel Peace Prize, an Oscar, or Heisman Trophy she can stand up and say, "I never knew I was suppose to have limitations. No one ever told me."
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| Grace today. 10/20/2010 |